Families in fight to reduce waiting times for expert help
PARENTS of disabled children are calling for improvements to a vital NHS service.
They claim their children are suffering because of a short-staffed and under-funded orthotics service at the University Hospital of North Staffordshire.
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CAMPAIGN: From left, Rebecca Loo, her son David, and Conor Lawton with his dad Gary. Above, David and Conor play football. Pictures: Wesley Webster
The service provides aids and equipment, such as splints and shoes, to patients with certain physical disabilities.
But parents say they face long delays waiting for orthotic devices to be fitted, which can leave their children unable to walk or enjoy a normal life.
Now parents have formed the North Staffs Orthotics Campaign to improve the service.
Rebecca Loo's 10-year-old son David has suffered from hemiplegia, which paralyses one side of the body, since birth, and he has an ankle-foot orthosis (AFO) to enable him to walk properly. But last year he underwent two-and-a-half months of serial casting to remodel his foot, and then had to wait 17 weeks for an AFO which meant he had to repeat the process.
Mrs Loo, of Howard Place, Westlands, said: "David has had an AFO since he was 18 months old. It stops deformities and prevents his foot from turning over when he walks.
"Last summer David didn't have an AFO, and it ruined our holiday. He couldn't get around, so we had to carry him.
"We can never get the orthotic devices quick enough.
"We want the campaign to let the hospital know what they're doing wrong and what they're doing right."
Cub scout David, who attends Friarswood Primary School in Newcastle, says he hates waiting to have a new AFO fitted.
He said: "I play basketball and football when I have my splint. When I don't have one I feel sad, because I can't really do anything I want to do."
Gary Lawton, whose son Conor, aged 10, has the same condition, is part of the campaign.
Conor plays for Aston Villa Marvels cerebral palsy team when he has an AFO.
But last year, after breaking his AFO, Conor had to wait more than three months for a new one.
Gary, aged 42, of Birches Head, said: "After three months we were told the AFO was on the shelf, but we had to wait another two weeks for an appointment.
"Conor was in pain. His foot turned over when he walked, and he gets bad back pain."
The hospital has about 4,600 orthotics appointments a year and a senior official has already met the campaign leaders.
A hospital spokesman said: "The service did experience some minor difficulties towards the end of last year due to unavoidable staffing circumstances.
"These, coupled with the current national shortage of orthotists, meant a small number of patients experienced a delay.
"We apologise for this temporary delay and assure patients all possible measures have been taken to restore the service."
To join the campaign group, email info@nsoc.org.uk







2 Comments
by rebecca, stoke-on-trent
Monday, March 15 2010, 7:07PM
“i know what you going thoug.”
by rebeca gent, stoke-on-trent
Monday, March 15 2010, 7:00PM
“my name is mrs r gent i had a problem with the orthotics last year. tow of my chidren were born with talipes wtich is club feet. my young son did not have his sheos or his splints on time. they lost his file then they got the wrond size. then when they finely got it wright my son endend up having a op on his feet. so in my eyes if they got it wright he wouldent had to have the op. then they tryed to do it too my little gril. they made me appent saying they were readey so when we got there they to us that the appent was cancelled. wll my little gril need them splints beauses just had here op. so i told them i want them and they said you would have come back in 3 weeks time. so i took it to there office. then they got it sorted for me. so i know how you going through.”