Dad's £15k goal as his baby awaits transplant
PROUD dad Sebastian Daly has set himself a fund-raising goal after being told his baby daughter urgently needed a liver transplant.
The 32-year-old wants to collect £15,000 for the Children's Liver Disease Foundation as he waits to hear news of a possible donor match for eight-month-old Imogen.
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Sebastian with wife Charlotte and daughter Imogen.
The brave tot suffers from billiary atresia illness, a rare condition which attacks her liver and affects just one in 15,000 babies.
First-time parents Sebastian and Charlotte Rogers became concerned last Christmas when Imogen was eight-weeks old.
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The couple, from Betley, noticed their newborn daughter's jaundice had failed to clear.
The family was sent to the University Hospital of North Staffordshire for tests where medics agreed to transfer her to Birmingham Children's Hospital.
Surgeons attempted to operate on Imogen on Christmas Eve in a bid to relieve the bile build up from the liver.
But the three-hour procedure proved unsuccessful and her parents were told she would need a transplant.
Now the pair admit they are simply waiting for the phone call to come.
Sebastian, who owns Pool Farm Veterinary Surgery, in Betley, said: "My mind is always on my little girl and every time I have a withheld number on my phone I think it could be the hospital." Imogen needs 24-hour-a-day care while she awaits the transplant that could give her a normal life.
Sebastian added: "She has a tube which goes through her nose and into her stomach for 15 hours a day and we have to make sure she doesn't pull that out.
"She also needs quite a lot of medicines every day and so she needs more involvement from us than for most babies of the same age."
And while Sebastian awaits news of a transplant, he is hoping to raise cash for young sufferers.
In September he will take part in the Great North Run and has already raised about £8,000 in sponsorship.
He said: "The charity has been very supportive and I want to help out.
"There will be six of us taking part and it is going to be a challenge for me to do a half-marathon, I haven't played rugby or anything in a few years.
"I am very grateful to the support of the community here and the NHS have been fantastic."
His efforts have now been recognised by The Sentinel's Father of the Year competition with Sebastian named among the winners.
He added: "It is really nice that people notice what we are doing but I don't do these things for personal attention."
Charlotte, aged 34, who is engaged to Sebastian, added: "It is amazing what he is doing to raise money."
To donate, visit www.justgiving.com/poolfarmvets
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