Angelena: Support helps me

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Wednesday, January 23, 2008
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This is Staffordshire

Well it is now 12 Days since my operation at the Queen Ellizabeth Hospital in Birmingham to stabilise my spine and decompress the vertibrae.

I am home now and feeling quite sore still. But the good news is that all the pain that I had in my legs and back seems to have gone - fingers crossed.

I sometimes feel like giving up because of all the pain from the operations but not for long. Why shouldn't I try to beat it?

Sometimes I get very low and weepy but then I seem to pick myself up and get on with it.

 

I know that I have a lot of good people's support like my fellow sufferer Bryan Baldwin and now Margaret Barker who also suffers with RCC and that make's me feel good.

 

It is so sad that Margaret is being put through this awful process of having to appeal against the negative decision of the PCT not to fund the drug Nexavar for her when clearly it is working to reduce her tumour. The only other treatment available to treat the disease by the NHS (Interferon) does not work.

The same old story and I feel for her.

Anyway I have another appointment with Prof James at the QE tomorrow to see what comes next. 

I must think onwards and upwards and try to deal with all that this awful disease gives me.

I thank god that I was clever enough, all those years ago on the school bus, to spot John and eventualy marry him , because he is there for me every hour of every day.

I pray that one day I will be able to give some happy times back to him and my family.

Speak soon Angelena.

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